Category Archives: Therapeutic Parenting

The Blame Game

I have found it increasingly hard to blog whilst there is so much going on in our lives. When I read our blog posts it would seem that we lurch from crisis to crisis and there never seems to be an end point. We still haven’t been to tribunal for the EHCPS (Education and Health Care Plans) and we still haven’t accessed any therapy.

But today I don’t want to talk about that. I want to talk about what can happen when SEN parents stand up for their children. I am not the first and I am sure I won’t be the last. Indeed there was an article on just this on the BBC news website recently entitled Parents ‘accused of exaggerating child illnesses’ which reported that the BBC had spoken to 10 families from Gloucestershire who say they’ve been accused of fabricating their children’s illnesses.

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There was a time when I couldn’t imagine this happening to me. But this is what I have been through in the last few months. Initially the girls’ school made accusations about me which I was not told about and then a professionals’ meeting was called. Interestingly only a select group of professionals was invited by the post adoption social worker; none of our health care professionals were invited until I requested it and it was too late for most of them to attend. Most of those in attendance had never met my children or only briefly. The decision was made to refer us for a full family assessment by children’s services. I was told by post adoption support, those professionals I work alongside and I thought were supportive, that perhaps I wasn’t safe to have my children because of my disability and perhaps it should be a child protection issue. It was said that I was exaggerating the children’s needs and more besides. I was devastated.

Interestingly both the girls’ school and our county’s social care have been graded by Ofsted as Required to Improve, grade 3. The therapists who support our family just received yet another Outstanding grade 1 rating from Ofsted. Our paediatrician is well respected across the county. I wonder how anyone can question their judgement?

After a few weeks a social worker (SW) was appointed and the assessment was carried out. I was praised for being open and honest at all times. Thankfully the SW rejected ALL of the accusations made about me. He found no grounds for any concerns at all and talked about my depth of knowledge and valuable experience of parenting adopted children. He made it clear that he believed the accusations were made due to lack of understanding and knowledge from some professionals involved, particularly from the school leadership, and were without any basis at all. He also write that in over 20 years of social work he has never seen such extreme needs as those in the girls’ assessments.

Of course I am relieved. I am appalled that this can happen to somebody as ordinary as me. I am disappointed that those who should have stood up for us in fact stood by and let this happen. I am shocked that a professional can make statements with no evidence and because of that you can be told your children may be removed. And that in this day and age a disabled parent can be seen as a risk to their children as a result of their disability without any real evidence.

Children’s services are happy with me and immediately closed the case. Adult social care, who I had previously referred myself to for some practical support, are also happy with how things are going but are there if I need them.

In time I will request copies of all the information held on me so I can be sure any lies have been cleared up and professionals can be held to account. I think that is important as I know I am not the only one. But for now I am going to try not to think about it.

I have been vindicated.

 

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An appeal

Many readers will already know that I am mum to 2 wonderful daughters aged 9 and 10. Both of my girls are adopted and have complex needs including Developmental Trauma Disorder, Anxiety Disorder and Sensory Integration Disorder amongst other things. Things are very difficult for us at home and, just like with many other care-experienced children, my children work hard to contain and mask their feelings in school and then explode once at home with me in their safe place. Recently the children’s paediatrician has written a letter in which she said she believes unless things change it will soon become impossible to keep the girls at home and that she believes we will need secure residential placements for them.

I am currently trying to gain for support for the children on 3 separate fronts all from Leicestershire Local Authority:

1) An appropriate educational provision with the support Emma and Sophie need to feel safe, nurtured and to be able to make progress

2) Therapy which many highly trained specialists have recommended after thorough assessments of Emma and Sophie

3) Practical support for us to enable us to keep the children at home.

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I  am now in the horrible position of having to crowdfund to try to get the support the girls and I will need to stay together as a family. Some readers will have witnessed my struggles over the last 5 or 6 years to get help for my family. I have sold my wedding and engagement rings, I have 2 or 3 things I can sell on EBay and can hold a car boot or yard sale. After that we don’t have anything left to sell; I’m not a person with many things of value. I hate doing this with a passion. I feel like I am begging. But I don’t know what else I can do 😦

I innocently thought at the beginning of this process that if the girls needed support in school, therapy etc that there would be help out there for us.

THIS IS NOT THE CASE

I need to fund any extra private specialist reports, a solicitor to help me preparing to go to tribunal, and another solicitor to ensure the girls get the specialist therapy which all their assessments say they need and to try to get us some practical support at home. This latter may well involve taking the Local Authority to judicial review which would be a very expensive process.
Please click on the link to read more details and to donate even a small amount. Every penny will be appreciated by all of us:

Fight for Emma and Sophie

This little pair will be incredibly grateful and so will I xxxxx

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Silence

Silence means I am overwhelmed by so many thoughts that I don’t know where to start.

Silence means I fear you may not understand my words nor my meaning.

Silence means I am worried about rejection or accusation.

Silence means I have said it all before and still it goes on….and on….and on….

фотограф Строганов Алексей http://www.BFoto.ru

“He who does not understand your silence will probably not understand your words.”
Elbert Hubbard

 

A blog return

It’s been so long since I’ve blogged that there may be nobody left to read this! I think it reflects how hard the last year has been for us at 3girlstogether. There came a point where I felt that nobody would want to continue reading me talking about lack of access to ASF, lack of support from SWs and other profs, and patchy support at school.  I was even boring myself talking about the vicious circle we were trapped in.

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Today I have decided I will try to think about how far we have come since my last post. For this post at least I will gloss over everything else. So here is what has changed in the last 9 months:

  • We have survived another year at school.
  • We have accessed ASF for assessments by specialist providers and have (nearly) got the finalised reports and costings for therapeutic input and further assessments.
  • I have tribunal dates for the LA’s refusal to assess for EHCPs for the girls.
  • I have finally found a nanny/support worker who will enable me to work and also give me one to one time with the girls each week.
  • Our local peer support group is going from strength to strength and now has over 60 members.
  • The girls now have a paediatrician which means they can quickly access other specialist referrals.
  • In term time I do something that I enjoy one morning a week

Actually when I look at that list I feel a little bit proud of what I have achieved in 9 months. Maybe I should blog more often!

 

 

To my daughter’s amazing LSA

Things have been up and down with the girls’ school this year; some great moments and frankly some dire ones. One thing that has been consistently wonderful this year is the support from the Learning Support Assistant (LSA) in Small’s class this year. Without her Small would not have got through the year. This lady met Small every morning and patiently chatted to us until Small was ready to leave me and go in, whether that took 5 minutes or 20.  And then end of the day she always took time to let me know how Small had been during the day. She understood Small’s needs better than anyone ever has in school and could tell how she was feeling just by how hard Small bounced against her in the morning! She tried to be there for my girl as much as she could (though we could have done with her all the time!) and gave her vital emotional support as well as sensory breaks which she introduced herself after reading up at home 🙂

At the end of the year I sent her some flowers and wrote her a card. What I wrote isn’t amazingly poetic or beautiful, because that’s not who I am, but it was heartfelt.

 Thank-You

To Mrs X

If I say you’re one in a million you will think it is a cliché but I actually mean it. We both know Small would not have survived this year without you.

Thank you for giving my little girl what she needed when I wasn’t there to do it. Thank you for listening to her, squeezing her, dancing with her and bouncing her. Thank you for gently reminding her of the boundaries without shaming her and thank you most of all for instinctively knowing what she needs and making sure she gets it. You have made it possible for Small to come to school this year.

We will miss your kind and intuitive support for her.

Thank you!

 

What does Acceptance actually mean?

I blogged about acceptance before, in fact you can read my blog here. That was 2 years ago now. And I think acceptance for me is changing.

Recently I had a break from social media for a few weeks to give myself time and space to think. I wanted to be sure that I am able to manage the girls long term. And I am. I know I am. My lovely GP has been helpful in talking through these issues and making me realise that I am doing a good job and I should stop putting pressure on myself or allowing others to do so. FullSizeRender

Parenting Small can be draining. The older she gets the more pronounced her difficulties seem. She is clingy with an insatiable need to be near me or on me. Her sensory issues, inflexibility, need for control and obsessions all seem to be getting steadily worse. I am accepting that this is just the way she is, and it’s ok for me to find it a little claustrophobic sometimes. I know how to prioritise my girls’ needs and do what is best for them. But I need to do the same for myself too.

But perhaps the biggest part of acceptance for me has to be learning to accept the status quo with my eldest. Many kind adopters have messaged me saying that it is fear that stops Eldest from showing love to me, that it will come in time if I persist with therapeutic parenting, that parenting children with trauma is a long game and if I keep it up eventually there will be a breakthrough. All those things are true for many adopters and many children. All those messages are sent with love, care and a desire to give me hope.

But what if it isn’t true for my family? What if Eldest does not have the ability to develop love or empathy for anyone? What if, in her eyes, people are like are objects or possessions, and she just isn’t able to develop beyond that? And what if she is unable to modify her negative behaviours in any significant way? Then all I am doing is putting pressure on her with my expectations. And pressure on myself too. I believe that is the case for us. There are a few who know us well who think I may be right.

I am still parenting therapeutically. I know we can have happy times, and I can make positive memories for us as a family. But I am no longer waiting for that elusive magical breakthrough with Eldest. I am trying to accept her limitations and love her for who she is and accepting that this is who she will always be.

I’m not there yet on this journey to acceptance but I’m getting there. I feel generally at peace and that can only be a good thing.

 

My Mum My Hero

My mum is amazing. I aspire to be like her. I have always wanted to be as successful and respected as she is. As good and honest a person as she is. To be as good a mum to my children as she was and is to me and my siblings.

Since I have adopted my mum has blown me away with her capacity to understand and show empathy both for my girls and for me. She has read up on attachment and has an admirable understanding of the impact of the girls’ past. She has shamelessly button-holed professionals she comes across in her voluntary work to quiz them on the intricacies of developmental trauma. She has driven miles not only to attend meetings with me but also to make valuable contributions in those meetings.

I know I can ring my mum and talk things through with her. She never gets tired of me repeating the same fears and worries, never offers unsolicited advice, she backs me up when I need it. Especially as a single mum it is amazing to know I can offload on someone who won’t judge me. She constantly expresses her belief that I am a good mum to my girls. She never makes me feel like a failure.

Circle of love

I have a very strong memory from my childhood of sitting on my mum’s knee and being comforted by the feel of her hug and by her distinct smell. It was a feeling of safety and security; being enveloped in her love. There’s nothing quite like that memory for me. My mum still has the ability to do that for me now even at my age. Just thinking about her makes me feel better!

Everybody should have somebody like my mum in their lives but I am convinced that she is one in a hundred million. My mum is definitely my hero!

Guilty as charged

I fight hard for my eldest daughter. I battle with professionals to get her what she needs. I take her out on day trips with her younger sister and we all have fun and make good memories. I go up to her room at bedtime to chat to her about the good things from our day and then tell her I love her and kiss her goodnight.

I use PACE a lot. I’m pretty good at wondering with her about what is going on under the surface; what’s driving her behaviour. I plan activities, structure our home lives etc. I try to parent her in the very best way possible.

At the moment I’m doing an attachment parenting course. Last week the psychologist running the course asked me if I thought the emotional connection was there for me. It was asked in a supportive way. Not in any way to criticise. And I answered truthfully.

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How does a parent remain emotionally engaged after 4 years of rejection?

I’m sure there are parents who do. I try. I try very hard. But I guess if I’m honest then the answer is probably no.

I’ve thought about this all week. I do know that the fact she isn’t able to love me still makes me cry. So there must be something there.

I hope and pray she doesn’t know how much I struggle with this. I’m guessing the professionals would say that she must know.

What does this make me? Human? A failure? Unworthy?

I don’t know

 

24 hours in 250 words

Positives

  • Bought a swimming pass for the summer today and they gave me an extra week free. Their cleaner said she’d bring a cuppa to poolside for me when I come on my own.
  • Spent a few hours with my friend and her funny toddlers while the girls were at school; stress free and a chance for a good chat.
  • DD1 managed to tell her new LSA she doesn’t like being tickled. Wow!
  • Took the girls out for tea tonight and they were in great moods. When we left not only did we get vouchers for a local attraction but they also gave me the girls’ meals for free.
  • In the restaurant DD2 said “I’m full. Can I leave some ice cream?” Wow again!

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And the other stuff…

  • In DD1’s memory book of Year 2 they’d staged a photo of her sitting on her class ‘pupil of the week’ chair. DD1 said “that’ll always remind me that my teacher never thought I was good enough to really sit there”. Grrrr
  • This morning I was greeted by the sight of a decapitated wild rabbit in the living room. Guilty cat nearby. Lucky me getting to pick up a bunny head and bunny body before breakfast.
  • DD1 ate a huge amount without chewing, even when I pointed out she was full. Came home, spent an hour kicking off in her room and is throwing up every 10 minutes 😦

Is it my fault?

Before I adopted I had a successful career. I would like to think I was well respected and pretty good at what I did. That involved dealing with many other senior professionals in different fields. That was easy, even enjoyable, for me.

So how is it that now I am unable to successfully advocate for my children? How is it that I find parenting them so hard?

Is it me? Am I lacking in resilience? If the girls were with someone else would they have got the help they need by now? Or even worse – if they were with someone else would they not need any help or support?

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Is it all my fault?

I’m managing to deal with the girls’ school – that’s exhausting in itself; trying to ensure they consider the girls’ needs when they plan lessons/activities without alienating staff. Not easy when eldest’s teacher rolls his eyes every time I mention that she is struggling. And now trying to gently lead them to a decent plan for transition into the next school year; trying not to tread on toes whilst achieving the best outcome for the girls.

I’m managing to speak to the GP to get a couple of physical issues dealt with for my youngest. He is at least listening and has made referrals for her.

But for the rest – I’ve walked away for now. I’m relieved to have CAMHS out of our lives. I feel sick when I get a letter or email from the placing authority. How ridiculous is that?! I feel weak. I feel ashamed of how weak I am.

Once I was someone different. But this is who I have become…